If there is a God...
I read the online magazine Salon fairly regularly and one of my favorite things to read is the advice column, Since You Asked. Recently, Cary Tennis, the columnist, included this in one of his responses, "If there is a God in your life it is a loving God that will catch you when you fall. Its attention to detail may be lacking. You would perhaps prefer a God better at multitasking and more attentive to your instructions. But if you believe in a God then a God is there for you." That about sums it up for me at the moment.
I'm incredibly grateful for the gift of my new congregation. More than one parent, after having met and spent some time with Nicholas, has come to me to tell me what a delightful and bright child he is and then went on to tell me of the difficult challenges that their child has had and the resources available in the area to meet those challenges. I haven't even had to tell folks about Nicholas' struggles; enough people in this congregation have had to manage various learning and emotional difficulties that they all just understand where we are. And, I got some feedback the other day that a number of people in the congregation had remarked that our situation with Nicholas really made them feel like I would be able to relate to them and what is happening in their life. All this time I worried that Nicholas' disabilities would be a curse to my ministry and God put us in a place where it seems to be the opposite.
After much research and lots of phone calls I've learned that the best possible place for Nicholas to be treated is at the Kennedy Krieger Institute at Johns Hopkins in Baltimore. They have an even better reputation for treating children than the NYU Child Study Center where we were before. And, they take our insurance. We will no longer have to pay for Nicholas' treatment out of pocket. The downside is that it takes about 2 months to get an appt., the intake process is difficult and lengthy. But, in good news, we found a treatment center in Annapolis that provides only short term care; they are designed to be a place for people like us who are waiting to get into another program. Oh, and they take our insurance too.
Third grade has been a nightmare for Nicholas so far. The teacher expects so much more from them in 3rd grade than in 2nd. His anxiety level is through the roof and he spends various portions of his day screaming. Yesterday he had to be physically removed from the classroom. Twice. Some days are better than others, but every day he is acting out and causing problems in the classroom. The teacher and I are in constant communication and the principal is great. We are going to meet soon to discuss revising Nicholas' IEP so that he can get the extra help that he needs to manage his emotions during the day. I learned at back-to-school night that his teacher has been teaching 3rd grade in that classroom for 16 years. This is a lady that knows what she is doing. She told me last week that her first priority with Nicholas is to help him feel safe in her room. Whew.
There are days that I just don't know how to help this child. There are days when I wish God was more present and a bit more attentive to my instructions - would it have been so hard to help Nicholas get through at least the first week of school without a major meltdown? But really, the truth is, we have been so blessed by what God has given us here. It is going to be a long road and we have much work to do. I'm already tired and wonder how I am going to continue on this journey with this child, but I know that God has caught us and that we are not going to just fall off the edge.
I'm incredibly grateful for the gift of my new congregation. More than one parent, after having met and spent some time with Nicholas, has come to me to tell me what a delightful and bright child he is and then went on to tell me of the difficult challenges that their child has had and the resources available in the area to meet those challenges. I haven't even had to tell folks about Nicholas' struggles; enough people in this congregation have had to manage various learning and emotional difficulties that they all just understand where we are. And, I got some feedback the other day that a number of people in the congregation had remarked that our situation with Nicholas really made them feel like I would be able to relate to them and what is happening in their life. All this time I worried that Nicholas' disabilities would be a curse to my ministry and God put us in a place where it seems to be the opposite.
After much research and lots of phone calls I've learned that the best possible place for Nicholas to be treated is at the Kennedy Krieger Institute at Johns Hopkins in Baltimore. They have an even better reputation for treating children than the NYU Child Study Center where we were before. And, they take our insurance. We will no longer have to pay for Nicholas' treatment out of pocket. The downside is that it takes about 2 months to get an appt., the intake process is difficult and lengthy. But, in good news, we found a treatment center in Annapolis that provides only short term care; they are designed to be a place for people like us who are waiting to get into another program. Oh, and they take our insurance too.
Third grade has been a nightmare for Nicholas so far. The teacher expects so much more from them in 3rd grade than in 2nd. His anxiety level is through the roof and he spends various portions of his day screaming. Yesterday he had to be physically removed from the classroom. Twice. Some days are better than others, but every day he is acting out and causing problems in the classroom. The teacher and I are in constant communication and the principal is great. We are going to meet soon to discuss revising Nicholas' IEP so that he can get the extra help that he needs to manage his emotions during the day. I learned at back-to-school night that his teacher has been teaching 3rd grade in that classroom for 16 years. This is a lady that knows what she is doing. She told me last week that her first priority with Nicholas is to help him feel safe in her room. Whew.
There are days that I just don't know how to help this child. There are days when I wish God was more present and a bit more attentive to my instructions - would it have been so hard to help Nicholas get through at least the first week of school without a major meltdown? But really, the truth is, we have been so blessed by what God has given us here. It is going to be a long road and we have much work to do. I'm already tired and wonder how I am going to continue on this journey with this child, but I know that God has caught us and that we are not going to just fall off the edge.

